Breathe
Real life, realness, reality, realize. What is the meaning of real? It means truth, genuine. The genuine, true, reality of having a baby with medical needs is HARD! So many women comment to new moms who are expecting babies with down syndrome that it is better on the other side. When you give birth to your baby and you see them, your worries go away. In part this is true, but for the moms who had to have babies in the nicu and go home on medical equipment and medicine, it is hard! I made a video of what all we have to do for Evey, from her oxygen, to her medicine, to her feeding pump, to her bottles and finally to her NG Tube. It's a lot, but she is worth it. It's also overwhelming! Overwhelming to be by myself when she rips her NG tube out and I have to try to put it back in her while her head is moving. Trying to put it back in her and worrying if she is going to have a tet spell and stop breathing because she is crying so much. This pas...