54 days

It's been 54 days since last updating the blog. From April until the end of May is a busy time of year for teachers. It's also been a rollercoaster of emotions for us as we have transitioned to CAP-C and a new nursing agency at the end of April. No one truly knows the amount of time it takes and the emotions a parent feels getting the RIGHT services for a child with a disability unless they have lived it. There are so many people that take a job just to get money. Others take a job because they are passionate about the work they do. The nurses we have met through the new agency just want a paycheck. I bought two more cameras to have in our house because I just do not trust the nurse that comes in to take care of Evey. When I have peeked in on them, the nurse is on her phone ALL the time, not interacting with Evey and does the bare minimum. It's been excruciating to watch. She has regressed with her development because the nurse does nothing with her. I have contacted t...