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Today is Laney's 12th birthday!
That means Joshua and I are getting old! We had fun from sunrise to sunset. Laney wanted to get her lunch group treats so Joshua took her to Dunkin to get donuts. Evey slept in and woke up super talkative and happy! Ty kept saying, "It's your REAL birthday!"
Ty had an hour delay sot he got to help me drop Evey off at school. Evey did not have a good day at school and cried most of the time. There were two new teachers in there and she didn't bond with them like she does with her regular assistant teacher.
I was supposed to talk with the therapists after I picked her up, but after I did some research I learned about a loophole in her IFSP. Usually when you have an IFSP the therapist is listed and the time and frequency of the service is listed. However, when a child goes to the school where Evey goes, the services are put under other services. When this happens, the time and frequency are thrown out the window, meaning that they can serve her for however long they feel like it. After finding this out, I got really upset. There was nothing for me to do to get Evey the one on one therapy sessions she needs through her school. I talked to Joshua about it and we both decided that it was not worth me always fighting to get what Evey needs. It has been an ongoing battle since September. I am tired. It should not be hard.
The Lead therapist did call me after I picked Evey up and after I got Evey settled at home, I called her back on the way to school. I let her know that I was still processing the therapy services and it was best for me not to talk to them because I was still frustrated by it all. She said Ok, and said that they were there to talk about anything. So I responded with, " I think I am going to pull her from the program so that she gets the one on one therapy she needs." The Lead therapist responded with, "OK we want to support Evey with whatever she needs and if that is what she needs we will support her." This program was talked up so much to me that it sounded fantastic, but as I saw her regress in the beginning of the year, all that talking turned into disappointment. I really wanted it to work for Evey so that she could get all of her therapy in one setting, but I needed her to progress too. I kept going back to August when she was almost crawling and now here we are at the end of January and she has yet to crawl. What was happening in those 5 months? Where would she be if I had kept her at home?
All I know is that once she begins getting more intensive one on one therapy services, Evey is going to grow and her physical abilities are going to come out. I have high hopes that she will be walking 2-3 steps by the time she is 24 months and she will be able to accomplish most, if not all, of the OT goals that Duke has suggested!
We ended the night with cupcakes and a dance party. Evey LOVED it. Laney turned 12 officially at 830pm tonight. She came 4 weeks early and on the dot. I am so glad she is the big sister to all her siblings! She keeps me grounded and will tell me if I am being too much. She loves unconditionally and I love that she is our first! She makes being a parent easy!
Be like a bee- hardworking, wise and delicate!
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