Home alone

 Being home alone with 4 kids can be hard,especially at night after a long day at work. 

Thankfully Laney and Jonah are old enough that they can help out a litte. We had a busy night of doing laundry, packing and icing a cake all before 7:30. Evey's congestion is almost gone and she had a really productive day playing, eating and sleeping. I am so glad she stayed home for another day of rest! 

When it's just me and the kids at home by ourselves, I get the big kids to decide what we have for dinner. It's got to be something easy and quick and preferably something Laney can fix while I am taking care of Evey. Before we picked up Ty, we made a pitstop to the Food Lion and I had them pick out something for us to eat. They both decided on White Castle hamburgers and breaded mozzarella cheese sticks. All the kids ate it up including Evey. 

Her little cheeks are super chapped from all of the nose wiping.  I put vitamin E oil mixed with coconut oil on them when she wakes up and the nurse puts some on after her nap. I also put it on right before bed. I think it's helping some but they still look really bad. It makes me hurt for her. 

She was in a silly mood this afternoon with Laney. I was in the kitchen making the icing for Laney's birthday cake since we will be celebrating with my family tomorrow and all I heard was giggles from Evey. I am so glad that Laney's wish of having a baby sister came true. Their bond will always be special!





Tomorrow will be a busy day and I think everyone is excited. Evey fell asleep quickly and is peacefully sleeping. Sometimes I wish I could sleep hard like her! 


Be like a bee-hardworking, wise and delicate!




Comments

Post a Comment

Popular posts from this blog

Expect the Unexpected

Image
       When I first started teaching at Cornerstone and the charter school way was new to me, a lot of things I had to learn how to handle without a program administrator or someone downtown telling me what to do. The best advice I got from our director was to expect the unexpected and things would seem a little easier. From that day on and each new school year I expected the unexpected so that I wouldn't get bogged down with all the chaos that a new school year brings.      At the beginning of this school year, I learned that Evey would need another open heart surgery. I was not expecting that to be told to us. Her doctors weren't expecting it either. I went into a whirlwind of emotions. I started the school year off with a negative attitude. I didn't want to be there. I couldn't handle putting Evey to sleep because the long nights at the hospital and after her first heart surgery  crept back in. There were many nights I cried because I just want...
Read more

March wind is a jolly fellow

Image
  He likes to joke and play. He turns umbrellas inside out And blows men's hats away. Just like the poem goes, March has brought us a whirlwind of growth! Evey started speech and physical therapy and has grown so much in the past two weeks. She has learned to say, "eat" when she wants to eat and she has learned to sign "up". We are working on 'requesting' words so that she can begin to request for items so that she is not getting frustrated.  We began our session with learning to say "wee" and modeling it for her. She does a great job when I get her attention. I learned that getting her attention by saying, "Evey, look at mommy's nose" works. It's something that I learned from my mother growing up when she worked with preschoolers. It also works with my kinders that I teach.  She also started getting in the crawling position on her own as well. She likes getting in this position then sliding down like she is sliding into home ...
Read more

54 days

Image
 It's been 54 days since last updating the blog.  From April until the end of May is a busy time of year for teachers. It's also been a rollercoaster of emotions for us as we have transitioned to CAP-C and a new nursing agency at the end of April. No one truly knows the amount of time it takes and the emotions a parent feels getting the RIGHT services for a child with a disability unless they have lived it.  There are so many people that take a job just to get money. Others take a job because they are passionate about the work they do. The nurses we have met through the new agency just want a paycheck. I bought two more cameras to have in our house because I just do not trust the nurse that comes in to take care of Evey. When I have peeked in on them, the nurse is on her phone ALL the time, not interacting with Evey and does the bare minimum. It's been excruciating to watch. She has regressed with her development because the nurse does nothing with her. I have contacted t...
Read more