Monday amIright?

 Wooo! What a day!

Between it being a Monday and  trying to get the kids back in the swing of a full week has been exhausting. I think the only person who had a relaxing day was Evey. She played and did some PT and OT exercises with the nurse and then took a 3 hour long nap. She was in a really good mood when I got home and I was super happy. She smiled and smiled and ate so good at supper. I gave her a bath and she loved every bit of it including getting her hair blow dried. She is growing up too fast! 

While she was busy relaxing, I was busy getting all the information on the new therapies and the CAP-C appeals process. It sounds super intimidating, but all it is, is a mediation. I've been in one mediation before so I know what to expect, but this will be different. It's me talking instead of listening. I am going to pray that I say the right words and that they hear me. This is a service that will help Evey now and in the future. It will allow us to have respite so that we can take a break and renew ourselves to be better parents and advocates for Evey. 

The going back and forth and making sure I understood everything I was reading all the while working today got to me. I kept telling myself, I shouldn't be working, I should be doing this full time. How am I going to get her from here to there, have time to do my own meetings  and still have time for the other kids? It's a lot to process, but knowing there is hope in the future for Evey to get better therapeutic care is what I am hanging on to. Yes, it will be hard and overwhelming at first, but it will all soon be the new routine and we will once again persevere through it. It's what we do as parents of special needs kids. We do what's best for our child and keep pushing forward. We don't stop until we see that our child can be independent as possible. 

Be like a bee-hardworking, wise and delicate!





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