Clean Clean Clean

 From Wednesday until today we cleaned our house top to bottom.

Once we figured out Evey had some sort of stomach bug, we also found out that Jonah had strep. Joshua and Laney stayed home from school on Friday to recover and Joshua was able to rest and get a head start on washing all the sheets. Since it was a nice weekend we opened the windows to let in the fresh air. 

Evey did great on Friday night and Saturday. It seemed like she was 95% better. Saturday night hit and she threw up again and then on Sunday morning had a massive blow out-diarrhea. We are hoping that it is the end of the stomach bug and she will begin to have more normal BMs soon. 

Friday afternoon

Friday night

Saturday Morning

We were able to go on a family walk this afternoon and everyone had fun getting out in the sun. We stayed outside and played on the playset and formed a plan on what yard work we are going to get done next weekend since we have a three day weekend. 

It was so nice to see Evey smile and hear her laugh. She even used her communication device on Saturday to let us know that she was thirsty. It may have still been by accident, but when we offered her something to drink, she drank it!



 I get so nervous when she stays sicker longer. It never eases up. The thoughts of what could happen creep in and I become anxious. 

Laney, Ty and I watched a documentary (Blink) on a family with 4 children and 3 of them are going blind. They take a trip to fill in their visual memory. I resonated with the mom because she mentioned how having 4 children is chaotic. She embraces the chaos and let's a lot of things go. She focuses on the now and worries less. She can't control what happens to her children, but she can provide a loving, memory filled life for them without losing control of her emotions. Why lose control when God knows exactly what is going to happen? In moments of my anxiety I have to lean on God to let my emotions move through me instead of holding on to them. 


Evey was able to eat chicken nuggets and her milk for lunch. I made ritz cracker chicken, lima beans, peas and green bean fries for dinner and she was able to eat a little of the chicken and a little green beans. I am hoping one day she will enjoy the lima beans like the rest of the girls do in the family. Laney used to call them llama beans and I can't wait to see what Evey calls them.

The CAP-C hearing went well! I am so glad Thrive was there to help me. I asked why it took so long for my application to be reviewed and the lady had no answer. She then asked what I wanted to gain from CAP-C and I told her respite nursing. Thrive had to intervene and let the CAP-C nurse know that whatever level of care Evey gets from Private Duty Nursing is what she should get from CAP-C. The CAP-C nurse had never heard that. After reviewing why Evey didn't qualify she asked if I had any questions so I asked since I had applied in March 2024 why we couldn't use the previous 12 months for hospital visits. She said that they would look into those and get back with me as long as I faxed them the discharge papers. So now we are at an impasse, which means that they need more information and no decision was made. I will have another hearing in front of a judge ( over the phone) in 4-6 weeks if I do not agree with their decision after they get a chance to review the hospital discharge papers. I should know in about 2 weeks what their decision is and then I can either cancel the hearing with the judge or move forward with it. I am hoping that we will not have to meet with a judge. 

God has a plan for Evey and our family and we will continue to put our Trust in Him and hang on to our Hope!

Be like a bee- hardworking, wise and delicate!



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